wnol.info February 21 2018

Charlie Gard granted USA citizenship so he can be treated in America

February 21 2018, 05:41 | Alexander Lowe

Dr Michio Hirano who will be examining Charlie Gard

Dr Michio Hirano who will be examining Charlie Gard

"We just passed amendment that grants permanent resident status to #CharlieGard and family so Charlie can get the medical treatment he needs", Rep. Jeff Fortenberry (R-Neb.) wrote on social media Tuesday night.

Gard and his family have been at the center of an global debate over whether governments can make life and death decisions for individuals.

Permanent U.S. residency for Gard would mean his parents, Connie Yates and Chris Gard, would not need permission from United Kingdom doctors to fly him to America for treatment. His parents, Chris Gard and Connie Yates, are desperately trying to bring him to the United States for experimental treatment. They seem intent on seeing this infant dead as soon as possible, whether because they fear the precedent it'll set if the law forces them in this case to support a seemingly hopeless patient indefinitely or because they're "experts" and the expert consensus must not be challenged by blind hope - even if that hope is itself backed by some medical opinion. Hirano flew to London to examine Charlie and the hospital expects to release an assessment by Thursday.

Mitochondrial DNA depletion syndrome is a progressive disease that causes muscle weakness and loss of motor skills, leaving those who have it unable to stand, walk, eat, talk and eventually breathe.

The meeting has been set up after Michio Hirano, a professor of neurology at the Columbia University Medical Centre in NY, spent around four-and-a-half hours inside the hospital on Monday. Nor would neuroscientist Dr. Michio Hirano be able to begin his treatment without their permission. We are at his bedside and feel satisfied he is not suffering or in any pain.

An American neurosurgeon who offered to treat Charlie is due to be among specialists gathering at the hospital. Justice Francis, presiding over Gard's new trial, subsequently invited Hirano to the U.K.to examine Gard as part of an worldwide team of medical experts.

The medical evidence under consideration at the hearing came from Hirano, who has offered nucleoside treatment more generally in the past, and who testified in this instance via live video.

Charlie's mother, Connie Yates, is also attending, alongside an independent chairman.

The expert is at the forefront of researching Charlie's rare form of mitochondrial disease, and told the High Court last week there was a "small but significant" chance of improvement. They raised more than $1 million for his care, and said they want to give Charlie every chance at life.

An American doctor specializing in treating rare genetic conditions is meeting with other specialists treating Charlie Gard, assessing the critically ill 11-month-old for the first time.

She said: "Our gorgeous baby boy is still stable". The increased attention Charlie's battle has attracted in the USA may have already been a factor in getting Charlie the help that he needs.

Other news